Office Hours: 8.30 - 16.30
+27 (0) 21 658 5108 / +27 (0) 21 685 2732

enquiries@rxradio.co.za

Red Cross War Memorial Children’s Hospital

Klipfontein Road Rondebosch, 7700 Cape Town, South Africa

The RX Radio My Health Journey Podcasts tell the experiences of patients and parents in the hospital and discuss various different illnesses and conditions. Each episode is intended to give advice and comfort to children with specific conditions and their parents, but it also covers informative and relative topics of illness and hospital. Two episodes of the My Health Journey Podcasts are released on the first Friday of every month at 12:00 and are roughly 20 to 30 minutes in length.

  • In order for communities and schools to understand children’s chronic conditions, they need to have easily accessible information about the condition that does not give away the privacy of a child. For this edition, we chat to RX Radio Reporters from Jan Kriel School about the right to “easily accessible information about my condition for my home, community and school”. They are also joined by Alma Snyman, the OT and Support Services Manager at Jan Kriel School.

  • Bullying is a difficult issue that a lot of children face and for children with disabilities and chronic conditions, it’s no different. We all deserve the right to dignity and respect and bullying goes against that right. Take a listen to RX Radio reporters talk about their experiences with bullying and the advice that they’d like to give to other children. You can also hear Clinical Psychologist Dr John-Joe Dawson-Squibb talking about the effects of bullying.

  • The right to counselling for child patients is important as it gives them the space to talk about the difficulties that they might be facing. Listen to this podcast as children talk about this right.

  • With a focus on Child Abuse and Gang Violence in Cape Town, this mainly follows the journey of Cwenga, an 11 year old girl who was a survivor of gang violence where she lost her eye. She touches on topics such as bullying and other types of abuse. Along with her story, you can hear what children in the hospital think about child abuse.

  • This episode on Children’s Rights in Hospital focuses on the need for nice food for patients. It not only looks at healthy food, but also food that children enjoy and would like to have in hospital. Patients, parents and healthcare workers talk about their views on nice food and why it’s important for children to have food in hospital. The Food Services Manager Melanie Coetzee then tells us more about how the kitchen works.

 

  • Following the series on Children’s Rights in Hospital, this episode focuses on the importance of having a clean environment in hospital and how it helps with the prevention of germs and infections. Patients, parents, and healthcare workers give their views on this right and Housekeeping Supervisor Louise Chenga discusses how the hospital is cleaned and looked after by the housekeeping staff.

  • Young Reporter Athule talks in isiXhosa with her mother, Nomawethu, about her experience with being on a ventilator while she sleeps. Sister Noluthando Zibi, a professional nurse working in E1, then expands on this by providing medical information relating to ventilation and traches.

  • Kliek hier en luister na Qaqamba se storie waar sy vir ons meer vertel oor haar lewe met ‘n tracheostomie en asemhaal masjien. Met die hulp van Suster Jane Booth van die Breatheasy program vertel Qaqamba vir ons hoe sy haar asemhaling toestelle gebruik. Suster Booth deel meer inligting oor wat pasiente met ‘n tracheostomie kan verwag by Rooi Kruis Kinder Hospitaal.

  • Here is the latest installment of the podcast series on Children’s Rights in Hospital. Lucy Jameson, researcher for the Children’s Institute unpacks the right to Consent and Participation in treatment in medical decision making. Patients and parents share their understanding and experience with this right in hospital. And health workers also speak about how they implement and respect this right.

  • May is Lupus Awareness Month, an annual observance to call attention to lupus and its impact on the lives of millions of individuals and families. For this edition of My Health Journey Podcast, Dr Kate Webb, Paediatric Rheumatologist, conducts a panel discussion with two young people living with Lupus, Matthew Lodewyk (14) and Mercedi Thomas (13). They discuss the importance of educating people about Lupus, the challenges they face and share their experiences of living with Lupus.

  • Abdul-Ansar Abrahams (12), along with his mom, shares his journey with Chronic Asthma and Bronchiolitis Obliterans. Prof Michael Levin, Head of the Allergy Clinic at Red Cross Children’s Hospital, expands on the medical side of Asthma, giving information and advice to other patients with Asthma.

  • Join Hakeem as he narrates his story of living with Haemophilia. He is joined by his little brother, Seraj who is also living with Heamophilia. The Barends brothers share about their experiences, diagnosis, the differences in their illness and how they have learnt to live with the condition. Also, in this podcast their dad, Abdul provides the history of the family and the role of the family in the life of a child who has Haemophilia.

  • This episode is the first of a continuing theme on children’s rights where health workers, patients and their parent/caregivers discuss the importance of rights for child patients. We also spoke to Lori Lake, researcher at the Children’s Institute. The Children’s Institute, University of Cape Town, aims to contribute to policies, laws and interventions that promote equality, realise the rights and improve the conditions of all children in South Africa, through research, advocacy, education and technical support.

  • Young Reporter Mujahid, along with his mother Kamilla, shares his experience as a burns survivor. Dr Gary Dos Passos, Head of the Burns Unit, and Caroline Morgan, Occupational Therapist at Red Cross, expand on Mujahid’s story by talking about the journey a burns patient goes through in the Burns Unit at Red Cross Children’s Hospital.

  • This is the first podcast in a series on Rheumatoid Arthritis – a group of conditions that cause pain and inflammation in the joints, especially in the fingers, wrists, feet, and ankles. In this part, Inga, along with her mom, talk about her experiences with Polyarteritis Nodosa and Prof Chris Scott explains this form of vasculitis and gives advice to other patients with this condition.

  • Listen to the second mini-podcast on Rheumatoid Arthritis where, Inga chats to Mecah, an 8-year-old with Juvenile Idiopathic Arthritis (JIA), and her mom about her time in hospital and dealing with her condition. Dr Shehnaaz Akhalwaya also talks to the listener about what JIA is and how patients can deal with this condition.

  • Here is the third instalment of the Rheumatoid Arthritis! Inga interviews Rania, a 12-year-old with SLE (otherwise known as Lupus), and her mom about how she first got diagnosed with this condition and how life has changed for her since her diagnosis. Dr Kate Webb informs the listener about Lupus and the butterfly rash that often indicates this condition.

  • RX Radio Reporter, Rowan, shares his health journey with Leukemia. He’s joined by his mom, Julie, who helps him to tell his story and she also shares advice with parents, who are starting a journey with Leukemia. Dr Marc Hendricks, from RCWCH’s Oncology Department, worked closely with Rowan while he was in hospital and he speaks about the treatment Rowan received, explains what Leukemia is and gives some helpful tips for parents and children conquering this illness.

  • Hiral, a patient at RCWMCH, shares her health journey with Nephrotic Syndrome. She’s joined by her mom, Karuna, who helps her to tell their story. Karuna also shares advice with parents, who are starting a journey with Nephrotic Syndrome. Dr Ashton Coetzee, from RCWCH’s Nephrolohy Department, worked closely with Hiral while she was in hospital and Dr. Coetzee speaks about the treatment Hiral received, explains what Nephrotic Syndrome is and gives some helpful tips for parents and children conquering this illness.

  • Young Reporter Kauthar, along with her mother Firdouz, shares their experience with Kauthar’s rare type of Nephrotic Syndrome. They are also joined by Prof. Mignon McCulloch, Paediatric Renal Specialist goes in depth with explaining how Kauthar’s condition is rare. Kauthar and mom talk about the difficulties they faced on their journey and give advice to parents and children starting their journey with this illness.

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